Things We Love

January 11th, 2010

We were recently asked by a woman what else she could do for her severe overactive bladder (the “gotta go, gotta go” problem).  She had been to her doctor; had tried medication; had made changes to her diet; had been faithfully doing her pelvic floor exercises, yet still felt restricted in her activities and nervous about traveling with her husband.  She asked us what else she could think about – she was tired of obsessing about where the next bathroom was!  Sound familiar?

This is a case that resonated for us, because there is a treatment available for women (and men) who have severe overactive bladder and, like this woman, have exhausted the menu of first line options, but are still unsatisfied.  InterStim Therapy, by Medtronic, is an implanted neurostimulation system which sends mild electrical pulses to the sacral nerve, a nerve near the tailbone that influences bladder control. While it is important to know that this therapy may not work for everyone, InterStim can prove extremely helpful with overactive bladder and even chronic pelvic pain symptoms.

It is important with any device or specialized treatment that you find a physician to discuss InterStim Therapy with that both knows you and your symptoms, as well as knows how to properly implant the device.

The therapy is done in two stages; first, the implantation of a test system – done on an outpatient basis – and then, if successful and well tolerated, a more permanent system can be implanted.  Again, this final step is typically done on an outpatient basis.

Medtronic InterStim® Therapy - Illustrated Depiction of Device Placement

Medtronic InterStim® Therapy - Illustrated Depiction of Device Placement

While we realize that words like “implantation” and “device” can sound invasive and scary, what we love about the InterStim Therapy is that it’s like a pacemaker for the bladder (in fact Medtronic is a leading manufacturer of pacemakers for the heart).  The procedure is performed without general anesthesia, should involve little or no discomfort after surgery and can be incredibly effective.  While not for everyone, for women like the one we mentioned above, this therapy is something for her to discuss with her doctor that might change her life and make a difference.  Two things we live for in our mission to “improve the pelvic health and wellness of women”!

Common but not Normal

November 17th, 2009

Overactive Bladder is a term we keep hearing, lately.  Doesn’t the term itself make you feel like it’s a more “cope-able” condition?    Like when you read articles in fitness magazines that preach reasons why you  can’t drop that last 5 lbs. is due to exercising too much or  not eating enough. Right.

My most definitive and embarrassing moment of OAB was when I took my then toddler son to the local playground.  I had drank a diet soda (which I now know is a bladder irritant) and the sudden urge to go to the bathroom hit me like a ton of bricks.  I knew in that instant I would never make it the 3 blocks safely home to my bathroom and whoosh – I had wet my pants.  That was my moment – the moment I knew it was time to get help.

Together with Medtronic, who helps women with their Interstim® Therapy,  Women’s Health Foundation is joining the “Facing our Moments” campaign.  As a voice for the 33 million American women dealing with OAB – this campaign is focusing on their own moments – moments when they knew it was time to seek help.  Overactive Bladder is common, clearly – we have the numbers to prove it.  But wetting your pants at the playground after drinking a Diet Mountain Dew is not normal.

So what exactly IS Overactive Bladder and how do you know if you have it?  The International Continence Society’s definition of OAB is “urgency, with or without urge incontinence, usually with frequency and nocturia.”
It’s that “gotta go, gotta go” feeling..when you’re running to the bathroom every chance you get.  Sometimes you don’t make it to the restroom like my fateful day at the playground and you leak a little bit or a lot.

A really easy way to help suppress that urgent feeling is to perform pelvic floor exercises, or Kegels.  These muscles are  vital when you try to hold urine in and when contracted,  you can successfully restrain the bladder’s involuntary contractions.  As soon as you get that nagging feeling, simply imagine as if you are gently closing in and around the openings and hold for 10 seconds (if you can), then release for 10 seconds.  If this doesn’t help immediately, no worries: the NIDDK reports that it will take up to 8 weeks to feel improvement.

If you’d like to learn more about OAB and the “Moment I Knew” campaign visit:  www.facingourmoments.com and  www.womenshealthfoundation.org.

 Facing our moments together

A General Note About Healthcare Reform

November 6th, 2009

No matter how you feel about the current swirling verbiage around healthcare reform, one thing I think we aren’t talking about enough is ACCESS.  We know there are millions of people in this country and are not insured.  The only access they have to healthcare is the ER – not efficient nor cost effective.

But another part of the access question that we forget about is the millions more of our working poor – many of them women – who don’t have access to healthcare because of burdens like working two jobs to support a family, being the primary breadwinner (“Who will watch the children if I go to the doctor?”), or not having sick days at their jobs.  Did you know that out of the 1.1 million workers in the private sector, 47% of them do not have paid sick days, according to Fred Mann of the Wichita Eagle.  There are currently 15 states advancing paid sick day legislation, but very few who actually guarantee it.  Click here for the National Partnership for Women & Families’ national map of the states  http://paidsickdays.nationalpartnership.org/site/PageServer?pagename=psd_toolkit_map_states

Along the path to guaranteeing healthcare for all, we must change policies like this that make it hard for women to seek the care they need for themselves or their families.  As we struggle with the H1N1 season and think about how to get our children and our pregnant women and other vulnerable populations, we must look ahead to bringing healthcare reform down to improving these simple issues.  Or, understand the alternative for people without sick leave – they go to work sick and spread the cold or flu they are coming down with to everyone they meet.

If you feel like I do about this, write, call or email your local and state politicians and urge them to adopt paid sick leave legislation.

Total Control Platinum – a success!

October 30th, 2009

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This week we presented the results of the 6 week research study on our newest program, Total Control Platinum, to our super seniors and their friends at one of our study sites.  These women watched themselves in a video – and you can too, just go to www.youtube.com/healthypelvis and click on the one with the wonderful women seated and exercising.

Not only did the ladies love seeing themselves on camera, but they were thrilled to learn that the results from the study were across the board successful.  Women reported statistically significant improvement in both stress and urge symptoms, as well as decrease in bothersomeness (a quality of life measure) and an increase in overall sense of well being.

The only group that didn’t have quite so much success was the education-only control group.  They learned some things and had a slight decrease in frustration, but not much, and it didn’t help their bladder control symptoms much.  So that was good data.

We are now in the beta launch or pilot of this program, in two of our study locations.  We are spending some time and effort really looking into the market before we deliver a product or program to them.  We hope to be off the ground and have Platinum commercially available by the first of 2010.

So to the ladies of Total Control Platinum, I say “thank you from the bottom of our research instruments – and our hearts!”  You are beautiful Pelvic Floor Evangelists, now go forth and “Energize Your Pelvic Pyramid!”

Ouch! It hurts down there!

September 30th, 2009

I am constantly reminded of why we do what we do; never so much as right now as I work through a strange pain on the left side of my tailbone.  Like I had fallen (but I hadn’t) and bruised it, my tailbone is tender to the touch and it hurts to sit for too long, especially in a mildly slumped position like in a car or plane or movie seat.

Because I have a world of pelvic medicine specialists in my Rolodex (or PDA, actually), I first called a physiatrist, or a rehab doctor who did an external and internal pelvic exam.  “It’s definitely muscular,” she said and added that is was good I had seen her first.  “If you would have seen your primary care doctor, they would have ordered an x-ray of your tailbone, which would have proven nothing, since it’s hard to get a good picture of the tailbone (due to the surrounding bowel).  She added that they would have most likely recommended sitting in a donut cushion until time ran its course and it “healed,” though we wouldn’t have know what was healing.  As she said, I would have lived in pain for a year or so, until I ended up in her office eventually, maybe worst the wear.

As I suspected might occur, I was given a prescription for pelvic floor physical therapy (PFPT).  Here’s the great part.

My PFPT, who I have known for years agreed that the muscles of my pelvic floor on the left side were tight, inflamed and sore (I almost jumped off the table as she palpated each of them!) and my tailbone was in fact about 30 degrees to the left of center.  With no clear trauma to the tailbone itself, we can only imagine that something – maybe scar tissue – is pulling on those small muscles on the lower left portion of my pelvis, but she’s not sure yet.  She did some internal and external work and I left with another appointment for next week.

Now here is where I want to ask a question?  How lucky am I to know all these people to call?  To be in this business where I know that I don’t have to live for years with pain – in silent suffering like so many women do.  How lucky am I to live in a city with dozens of practicing pelvic medicine specialists?  And even more, how many millions of women are running around with chronic pain “down there,” but don’t even know female pelvic medicine is a specialit nor that physical therapy in this area exists?

Pelvic pain can be caused by many, many conditions.  Sometimes it responds well to non-invasive therapies like P.T..  Sometimes more complicated solutions are needed.  PT can be a one-off solution or something you do for long periods of time.

I don’t know how this course of therapy is going to go, nor do I know for how long I will be in therapy, but I will let you know.  That’s where I really consider myself lucky – that I can write these words to you and encourage anyone reading them who is in pain to act!

Six Minute Pelvic Pyramid Workout….from one of our Boston instructors

December 18th, 2008

Sometimes we inspire greatness and in this case, we have inspired a Pelvic Floor Evangelist in Janice K. from Boston.

 After Janice took Level 1 Total Control training 2 years ago, she wrote me and said she wanted to help us come up with a shortened version of our Total Control workout for ladies who want to make sure and exercise the three Pelvic Pyramid muscles, but who don’t have an hour.

This week, Janice emailed me her “Six Minute Pelvic Pyramid Workout”, which I include as a holiday gift to all of you.  Do this combo workout everyday to stay “Fit, Sexy & In Control!”  Do them before you get out of bed; do them right before you go to sleep.  Just Do It/Them!!

Thank you, Janice!

6-MINUTE Pelvic Pyramid Workout [The power of “less is more”]By:  Total Control Instructor Janice Kahn Using:  Neutral Spine                Rib-Cage Breathing 

  1. Transverse Abdominals (TVA) – front of the Pelvic Pyramid

Landmark: 2nd and 3rdfingers of both hands rest gently along bikini panty line (2”in from hip bones towards navel, 1” down)Image: Corset gently tightening; theraband, pulling navel away from a birthday candle flameExercise: supine (hooklying) position, knees bent with feet on floor 10 short contractions: inhale to prepare, exhale to engage1 10-second hold: remember to breathe!For extra credit: 10 clams each side, TVA hold sustained, breathe 

  1. Multifidus – back of the Pelvic Pyramid

Landmark: palm or back of hand rests on either side of spine at waist                Image: lengthening the spine, stretching a candy necklaceExercise: sidelying position; top leg is long, ankle rests on a 6”ball, a pillow folded in half, or a small towel folded, bottom leg is bent [looks like #4]                Remember to activate TVA and sustain through the exercise!                Inhale to prepare, exhale to engage TVA                10 short press down on ball/pillow/towel with top leg and release                1 10-second hold                Switch sides and repeat 

  1. Pelvic Floor Muscles (PFM) – floor of the Pelvic Pyramid

Landmark: lightly place two fingers on perineum, reach from behindImage: drawing up a crystal tampon, elevator lifting up one floor, stopping the flow of urine or gasExercise 1: fetal position (no TVA, normal breathing) – using landmark10 short contractions – WALTZ – “squeeze and lift, relax, relax” or think of “on – off – off”; followed by 10-second restExercise 2: supine position (check that buttocks are relaxed during exercises)1 10-second contraction followed by 10-second rest1 “Elevator” contraction: squeeze and lift one floor and hold for 5 seconds, then gently squeeze to bring the “elevator” up one floor at a time 4 to 5 floors, and relaxRemember: never to engage the PFM more than to floor 6 – 8. CONGRATULATIONS!


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FDA Alerts Consumers Of Risks Of Mesh

October 28th, 2008

Last week the FDA issued a public health notification on the use of surgical mesh for treating uterine prolapse and stress incontinence.  Here is the link:  http://www.fda.gov/cdrh/safety/102008-surgicalmesh.html.

Some things to know:

  • About 380,000 procedures are done annually in the U.S. using surgical mesh.
  • Over the past three years, FDA has received over 1,000 reports of complications from the nine surgical mesh manufacturers.
  • These complications have included erosion into the bladder, urethra or vagina, pain or even reports of bowel, bladder or blood vessel perforation during insertion of the mesh.
  • There are various kinds of mesh - from biologic to synthetic – and different procedures may use differnt amounts of mesh.

 The FDA issued guidelines for physicians, but what I wanted to say to you is that if you are having an operation for prolapse or stress incontinence repair, you may want to ask your doctor a few basic questions:

  1. How much mesh is being used?
  2. Where is it being placed and how is the incision performed?
  3. How many of these procedures have you done and where/how did you get trained?
  4. What types of risks are associated with the procedure and what are the potential complications?
  5. What warning signs should you look for in the weeks following surgery?

For me, a patient who has had, herself, some complications associated with the gold standard of pelvic surgery involving mesh, I must say that this FDA warning is a good thing.  To me, it reiterates the need to talk to your doctor and highlights the importance of you being an aware consumer.

No procedure is without risk, but to minimize the risk of any surgery, you should have confidence that your doctor does these procedures regularly, is well trained in the products he/she is using and, perhaps in the case of mesh, which is a foreign object being placed in your body, uses just what he/she needs in the situation.  This is not a case for “bigger is better.”

I have also learned as a patient, that you are your own best advocate, so ask questions and keep asking questions until you are comfortable with the answers.  

Calling all you women of Chicago…

August 11th, 2008

Join Us As We Improve Our Health and the Health of Nepalese Women!

 

SD Rehab and Women’s Health Foundation have partnered to bring health to both the women of Nepal and the women of Chicago!  Postural Pilates - Strength and Vitality Throughout Our Lifetime, a one hour fitness class, will be offered August 23rd at 10 a.m. All donations will go towards Women’s Health Foundation’s upcoming humanitarian and medical mission: Secret Shame: Uterine Prolapse Among Women in Nepal. 

Here is a little information on the class that will be offered: Designed by a rehabilitation specialist and pilates instructor with extensive knowledge of the body’s anatomy & natural alignment, this class can only improve your posture and vitality!  This class is appropriate for all levels of fitness and includes the use of foam rollers, resistive bands light weights and Pilates mat exercises to increase your overall flexibility, improve your core strength, and align your spine. Participation will help you to look and feel better throughout your lifetime!

So come out and help improve the lives of Nepalese women and help boost your own health and wellness too!

Postural Pilates – “Strength and Flexibility for a Lifetime”

Where: SD Rehab 1962 North Bissell Street, Chicago, Illinois

When: Saturday, August 23, 2008

Time: 10am-11am

$15.00 Donation

This class is appropriate for all levels of ability. To register, call SD Rehab at 773.477.7599

SD Rehab is sponsoring this class to assist the Women’s Health Foundation in their fundraising efforts. All proceeds from the class will go to the Women’s Health Foundation, a non for profit organization dedicated to the health of women.

Great Way To Remember To Do Your Kegels

August 9th, 2008

We hear from women all the time, “I know I should do my pelvic floor exercises (i.e. Kegels), but I always forget.”  Well, we wanted to make it easy for your to be mindful of “The Biggest Set of Muscles We Never Work Out!”, as we say – your pelvic floor.

Introducing the Total Control Widget:  http://www.totalcontrolprogram.com/widget/

For those of you that are new to widgets, think about those handy icons you can open or download to your desktop that tell you the weather, the time or perhaps track the stock market. 

The Total Control widget, when “hidden” looks discreetly like a line green square button.  When you click on it and open the widget, you will see our Total Control gal, Tilly, standing in front of an old-fashioned elevator.  Click on the elevator and you will be cued to perform 10 pelvic floor lifts, each held for 10 seconds and each followed by an extremely important 10 second rest.

The coolest feature of the widget is the customization.  You can program the widget to open on your desk top up to two times a day – hence your built-in reminder to “Just Do It!”, to quote a famous sports apparel company.  We recommend twice a day, say at 10 & 2 (that would be 10 a.m. & 2 p.m., unless you are a night owl).

One note, the first time you download the widget, you will be instructed to download Yahoo Widgets first.  Don’t be scared, it doesn’t mean your desktop will be littered with other icons – unless you want it to.  We try to bring you cool innovations, but are, of course, a non-profit, so it was more economical for us to build the widget within Yahoo Widgetland. 

Please let us know your thoughts by email our Director of Marketing (and chief widget architect), Molly at molly@womenshealthfoundation.org or reply to this blog.

 So, as always, stay “Fit, Sexy & In Control!”

Yours in pelvic health,

Missy

The Women In Pink That Changed My Life

June 24th, 2008

Last weekend, I was honored to speak at a retreat for breast cancer patients and survivors in southern New Hampshire called Knowledge, Strength & Grace, the brainchild of Dr. Carolyn Kaelin, Harvard oncologist and herself a breast cancer survivor.   This amazing 3 day “camp” (literally held at a Y family camp on Lake Winnipesaukee) was free for the 200 women who attended – many from metro Boston, many of whom had never been out of the city, nor state, many of whom who had never been on a boat before.  The retreat was a combination woman-bonding experience (featuring all things pink), oncological update (showcasing lectures by Brigham Women’s and Dana Farber’s finest physicians on topics like alternative treatments for breast cancer), and fitness and educational breakout sessions.  This is where I came in.

Dr. Kaelin asked me to come and give two educational sessions and one fitness sessions for the women, of course around their pelvic health and featuring many of the moves, tip and topics from our Total Control program.  By request of the women attending the educational sessions, I ended up doing two fitness sessions after each of the educational sessions and in doing so, had the experience of my lifetime.

It’s funny, I was so nervous before I got to the retreat and I actually (for the first time in my life) had “speaker’s block” when it came to segueing from breast cancer to pelvic health.  I thought, “How could I make what I wanted to share with these ladies – all of whom who had looked at the face of the big “C word” and survived – relevant and important to them?”  Luckily, I posed that question to my husband, Kim, who is an amazing public speaker and himself an ardent “Pelvic Floor Evangelist.”

He said, “You know, at the end of all the breast cancer treatments, these women are still women – they all run the risk of having out of control bladders or falling uteruses from childbirth. “  When I checked into the average age of the participants (60), I realized he was absolutely right and if they were menopausal, they stood a big risk of dealing with issues like incontinence.  A condition, as we know that while it does not kill you, it can ruin your quality of life. 

I also knew that cancer treatments like radiation and chemotherapy wreck havoc on your body – even if they are targeting breast cancer.  Vomiting after radiation can cause stress incontinence.  Radiation can also cause tissues like the vagina to thin, which can lead to painful intercourse.  Chemotherapy drugs do lots of unpleasant things, but for estrogen sensitive cancers, like breast and ovarian, treatments literally turn off estrogen production, which throws a woman right into early menopause, and all the fantastic menopause symptoms (including vaginal dryness, urgency and even stress incontinence).

So, armed with what I knew about these women’s demographics and probable treatment side effects, I did my thing.  The first thing to accomplish, in 90 minutes, was to try and get them excited about their pelvises again.  I did it by talking about how critical the pelvis is to their structure, their sexuality, their continence, their femininity. I shared with them the basics of pelvic anatomy, what can commonly go wrong and what they can do to immediately make a positive impact in their pelvic health and fitness.  We ended with a seated demo of the Pelvic Pyramid muscles which was a hint of the exercises in the fitness sessions following.

In each of the fitness sessions, these beautiful women – all so excited to be learning things that might keep them out of the bathroom every 30 minutes, or help them do a fitness walk without leading, or might help them eventually sleep through the night – went through a mini-Total Control program in a 45 minute session.  I sent them home with their own copies of our Total Control DVD, so they could practice what they’d “learned” at home, as well as a copy of our book, “You Go Girl, But Only When You Want To!”

From their immediate feedback and the emails I have received, I know they enjoyed their learning and their exercises, but here’s what I got out of the experience:

  • A deep respect for the resiliency of the human spirit – particularly the spirit of women – in the face of tragedy
  • A sense of wonder for how someone can go through so much in their life, yet maintain a wicked (even sick!) sense of humor
  • An appreciation for the miracle of our bodies – even if beaten down by cancer, scarred by surgery, radiated or flushed with drugs – it can be beautiful, strong and vibrant on the other side of illness
  • A humble gratitude for the ability to share what I knew with them; to be able to teach them a little tip that could make them smile and also change their life for the better, all at the same time

I hope to be able to go to this fantastic event another year.  I hope to work with some of the cancer research and treatment centers in Chicago to bring something like Knowledge, Strength & Grace to the Midwest.  If only we can find a location as spectacular as a wooded YMCA camp on an island in a lake in Southern New Hampshire! 

If you are interested in attending Knowledge, Strength & Grace next year, post a comment with your email and I’ll forward it along to the people in Boston.  If you are interested in something like this in Chicago, let me know! 

An interesting site I found in my research about sexual side effects and coping mechanisms for cancer patients is from the Mayo Clinic:  http://www.mayoclinic.com/health/cancer-treatment/SA00071

Have a wonderful week!

Yours in pelvic health,

Missy